http://www.health.state.ny.us/nysdoh/child/index.htm

New York State Early Intervention Program: A Parents' Guide for Children with Special Needs - Birth to Age Three.

http://www.cdc.gov/

Homepage of the Centers for Disease Control. Allows access to MMWR (Morbidity and Mortality Weekly Reviews).

http://www.familyvillage.wisc.edu/index.htmlx

Family Village is a global community that integrates information, resources and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those that provide them services and support.

It includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature.

http://www3.ncbi.nlm.nih.gov/Omim/

OMIM Home Page--Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere.

http://www.mcare.net/

The National Clearinghouse Managed Care and Long-Term Supports and Services for People with Developmental Disabilities and their Families.

http://biotech.icmb.utexas.edu/pages/dictionary.html

On-line medical dictionary that includes newer genetic terms.

http://www.irsc.org/disability.htm

Disability links provides on-line links to topics related to disabilities (like hydrocephalus and spina bifida, adaptive equipment, learning disabilities, etc.)

http://www.edlaw.net/

The EDLAW Center is a nonprofit organization developing and sponsoring projects for systemic change. E.g., presents attorneys who represent parents of children with disabilities, and "Transporting Students with Disabilities: A Manual".

http://www.waisman.wisc.edu/~rowley/mums/MUM-HOME.HTM

MUMS National Parent-to-Parent Network. MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition. MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.

http://weber.u.washington.edu/~healthtr/

ADOLESCENT HEALTH TRANSITION PROJECT, A health and transition resource for adolescents with special health care needs, chronic illnesses, physical or developmental disabilities.

http://www.echp.edu/cshen/

State CSHCN (Children with Special Health Care Needs) Programs.

http://www.ichp.edu/mchb/access/index.html

Center for Automation and Care Coordination Enhancing Service Systems in Maternal and Child Health is funded by the Maternal and Child Health Bureau, Integrated Services Division, to work with state CSHCN/Title V programs to improve care coordination and develop or strengthen information systems that support family centered services and data sharing within and among agencies. The project builds on activities and relationships begun by the National Center for Case Management and Automation (NCCMA).

ACCESS-MCH provides advice, tools, and resources to help CSHCN programs systematically assess their organizational processes and relationships. The goal of work is to build systems and generate information to improve care for children.

http://www.nichcy.org/

NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.  Its special focus is children and youth (birth to age 22).

http://www.eparent.com/

"Exceptional Parent" Magazine website. Provides excellent resources for families of children with disabilities.

http://www.pedianet.com/

Site for professionals and parents