General Parenting

KidsHealth

Parent info on behavior, medical problems, safety, nutrition, etc. from Nemours Children's Hospital. Also has info/games for kids

Sesame Street Parents

A nice site brought to you by old friends at Children's Television Workshop with articles on activities for families, behavior and discipline, child development, health and safety, as well as education, family and community issues and reviews of books,etc.


Breastfeeding Resources

Breastfeeding Articles and Resources from ParentsPlace.com

Lots of useful information in a Q & A format presented by a lactation consultant

LaLeche League International , Breastfeeding Solutions from Medela, Inc

A commercial site with loads of good information, particularly about breast pumps, which of course they make!

Parent Place

Bright Futures at Georgetown University
Bright Futures – Guidelines for Health Supervision

Dr. Newman's Pages on Breastfeeding


Online Patient Education Sheets for Parents

From Johns Hopkins a large compendium of links to patient info on many pediatric conditions

Information sheets on communicable diseases from NYS Dept of Health

Vaccine information sheets from CDC by way of NYS Dept of Health


Special Disease and Condition Resources

General information/support pages

Family Village

An extensive database of web links and other contacts and information on many disabling conditions of childhood - the site to visit if condition of interest is not listed below

Parents Helping Parents

A support group web site for parents of children with any serious or disabling illness

National Parent to Parent Support and Information System

Linking parents of children with special health care needs and rare disorders

Family Voices

A national grassroots network of families and friends speaking on behalf of children with special health care needs

The Alliance of Genetic Support Groups

A non-profit organization dedicated to helping individuals and families who have genetic disorders with a toll-free helpline as a resource for consumers and professionals who are looking for genetic support groups and genetic services.

Patient Internet Link

This free service is provided for Patients/Family/Friends to communicate with each other about hospitalized patients via customizable web pages

Needy Meds

    A listing, by drug company or specific drugs, of patient assistance programs for those families needing help with costs

The Celiac Support Pages

Asthma and Allergy

Asthma and Allergy Network Mothers of Asthmatics, Inc

AMA Asthma Information Center

Allergy and Asthma Foundation of America

American Academy of Allergy, Asthma and Immunology patient information

American Lung Association- asthma in children

e-ASTHMA, a complete one-stop Website to excellent Asthma Care.

Asthma Education Network

The Quack Asthma Cure page

Attention Deficit Disorder

Children and Adults with Attention Deficit Disorders (CH.A.D.D.)

National Attention Defecit Disorder Association

Autism

Autism Society of America

Autism links

Asperger Syndrome Support Network

Autism Resources

Birth Defects

March of Dimes Home Page

Association of Birth Defect Children

The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support

Blind Children

Blind Children's Center

National Org of Parents of Blind Children

Cancer

Children's Cancer Web

Candlelighters Childhood Cancer Foundation

Oncolink- cancer info from U Penn

Childrens Brain Tumor Foundation

Cerebral Palsy

United Cerebral Palsy

A Tutorial from U Va

Cleft Lip and Palate

Wide Smiles

The American Cleft Palate-Craniofacial Association

Congenital Heart Disease and Arrhythmia

Congenital Heart Disease Resource Page

Sudden Arrhythmia Death Syndromes Foundation, info on prolonged QT

Congenital Syndromes

Williams Syndrome Association

Prader-Willi Syndrome

CriDuChat syndrome support

Arthrogryposis Multiplex Congenital Support

Angelman Syndrome

CHARGE Syndrome

Cystic Fibrosis

Cystic Fibrosis Foundation

CF-Web

Deafness/Hearing Loss

Where Do We Go from Hear?

Deaf World Web

Deafness from the Mining Co pages

Alport Syndrome Home Page.

Death and the Terminally Ill Child

Make-A-Wish Foundation

Compassionate Friends

Dermatology (Skin) Conditions

National Psoriasis Foundation

National Center for Ectodermal Dysplasia

National Organization for Albinism and Hypopigmentation

Diabetes

American Diabetes Assoc.

Juvenile Diabetes Foundation

Children with Diabetes Online Community

Online Resources for Diabetics

Diabetes Monitor - links to many diabetes sites

Managing Your Diabetes

Disabilities

Support group for parents of disabled children

Internet Resources for Special Children

Sibling Support - for siblings of disabled children

Divorce

The New York State Parent Education and Awareness Program is designed to educate divorcing or separating parents about the impact of their breakup on their children. The primary goal is to teach parents ways they can reduce the stress of family changes and protect their children from the negative effects of ongoing parental conflict in order to foster and promote their children's healthy adjustment and development.  Four topics are addressed in the Parenting & Child Well-Being portion of the curriculum:

    • Creating and Maintaining Supportive Parent-Child Relationships;
    • Providing a Stable, Supportive Home Environment;
    • Maintaining Healthy Parental Functioning & Psychological Well-Being; and
    • Protecting Children from Ongoing Conflict Between Parents.

There is also an overview of the Legal Process.  The New York State Parent Education and Awareness Program currently has 50 certified providers with a presence in all 62 Counties in New York State.   Please go to their website at www.nycourts.gov/parented for more information and a list of certified providers.

Down's Syndrome

Down Syndrome WWW Page

National Down Syndrome Society

Down's Syndrome - Health Issues, by pediatrician and father of Downs syndrome child

Growth Charts for Children with Down Syndrome

Ear, nose and throat problems

Kids-ent.com - the ear, nose and throat page for parents

Epilepsy

Epilepsy Foundation of America

Epilepsy-International

Washington Univ. Comprehensive Epilepsy Program

Food Allergy

Food Allergy Network

Info on food allergy from American Academy of Allergy, Asthma and Immunology

International Food Information Council - Food Allergy/ Asthma

Fragile X Syndrome

FRAXA Research Foundation

The ARC, national site for mental retardation

Gastrointestinal Conditions

Inflammatory bowel disease

Pediatric and adolescent gastroesophageal reflux assoc.

Children's Liver Alliance

Hemangioma and Vascular Birthmark

Hemangioma and Vascular Birthmarks Foundation

Hydrocephalus

Hydrocephalus Association

Kidney Disease

National Kidney Foundation

Information on kidney diseases from NIH

Renal Net

American Association of Kidney Patients

Alport Syndrome Home Page.

Klippel-Feil Syndrome

KFS Circle of Friends

Learning Disability

Learning Disabilities Online

Learning Disabilities Association

International Dyslexia Association

Mental Retardation

The ARC, national site for mental retardation

Mitochondrial Diseases

The United Mitochondrial Disease Foundation

Multiple Births

National Organization of Mothers of Twins Clubs

Mothers of Super Twins (triplets +)

The Triplet Connection

TWINS Magazine (some sample articles)

Neurofibromatosis

National Neurofibromatosis Foundation

Neurofibromatosis Support

Obsessive-Compulsive Disorder

OCD Resource Center

Organ Transplantation

Children's Organ Transplantation Assoc.

Prematurity

For Parents of Premies

Rare Diseases

National Organization for Rare Disorders (NORD)

Rare Genetic Diseases in Children

Sexuality

    Planned Parenthood

      All about sex, contraception, abortion, adoption and other health issues

    Dr. Ruth Online

      She's older than many pediatricians but she does know a lot about sex - features sex question of the day, sex tips, and her favorite links, books, etc

    Coalition for Positive Sexuality

      Information for teens about safe sex, birth control, HIV testing, STDs and other topics, discussed in a frank and straightforward style.

    Substance Abuse

    The Web of Addiction

      A no nonsense collection of facts and links about alcohol and drug addiction

    D.A.R.E. Homepage

      An important educational resource ...the kids section is aimed at school aged and pre-teens

    Alcoholics Anonymous

      The original 12-step self-help group for alcoholics including young people

    Al-anon and Alateen Page

      A worldwide self-help organization for families (including teen children) of alcoholics, some of whom, by way of genetics, are at risk for alcoholism

    Sickle Cell Anemia


    Sickle Cell Information Center

    Spina Bifida

    Children with Spina Bifida

    Spina Bifida Assoc. of America

    Association for Awareness of Occult Spinal Dysraphism

    Sudden Infant Death Syndrome

    SIDS Network

    American SIDS Institute

    Tay-Sachs and other degenerative diseases

    National Tay-Sachs and Allied Diseases Org

    Thalassemia (Cooley's Anemia)

    Cooley's Anemia Foundation


    Seasonal Safety Resources

    Visit CPSC Kid's Page - handouts on various safety issues


    Bicycling Safety

    Bicycle safety for your young child, from St. Chris Hospital

    What Every Parent Should Know

    Bicycle Safety Information from CPSC

    CPSC Issues New Safety Standard for Bike Helmets

    Ten things you should know before purchasing a helmet

    Five Bicycle Safety Concepts to Teach 9-12 Year Olds

    Bicycling on the Left - Exploring the Myth

    Bicycle Safety Tips

      For older riders - basically traffic safety

    Bike Safety

      Simple bike safety for kids page

    The WWW Bike Repair Shop - the online repair manual

      Keeping a bike in good repair is also important for safety

    Rollerblading Safety
    International In-Line Skating Association - safety infoNational Safety Council Facts - Inline Skating
    AAA Foundation for Traffic Safety - Inline Skating Safety

    Sun Safety

    American Academy of Dermatology's Sun Safety Page

    Summer Sun Safety from kidshealth.org

    Use Sunscreens as Part of Sun Safety Program Says American Academy of Dermatology


    Miscellaneous - other health related and some fun sites


      Teen Advice Online

        Teens helping teens

      HEARNet

        Web site of H.E.A.R. (Hearing Education and Awareness for Rockers) which is "a non-profit organization dedicated to raising awareness of the real dangers of repeated exposure to excessive noise levels

      Frequently Asked Questions for Teenage Orthodontic Patients

        A guide to braces for teenagers