General Parenting

​

• KidsThrive585

       Offers listings of health, family and child resources at your fingertips.

• KidsHealth
  Parent info on behavior, medical problems, safety, nutrition, etc. from Nemours Children's Hospital. Also has info/games for kids.
   

• Sesame Street Parents
  A nice site brought to you by old friends at Children's Television Workshop with articles on activities for families, behavior and discipline, child development, health and safety, as well as education, family and community issues and reviews of books,etc.
   

Breastfeeding
 

• Breastfeeding Articles and Resources from ParentsPlace.com
  Lots of useful information in a Q & A format presented by a lactation consultant
   

• LaLeche League International
   

• Breastfeeding Solutions from Medela, Inc
  A commercial site with loads of good information, particularly about breast pumps, which of course they make.
   

• Bright Futures at Georgetown University
   

• Bright Futures – Guidelines for Health Supervision
   

• Dr. Newman's Pages on Breastfeeding

 

Online Patient Education Sheets for Parents
 

• From Johns Hopkins a large compendium of links to patient info on many pediatric conditions
   

• Information sheets on communicable diseases from NYS Dept of Health
   

• Vaccine information sheets from CDC by way of NYS Dept of Health

​

Special Disease and Condition Resources

General information/support pages:

 

• Parents Helping Parents
  A support group web site for parents of children with any serious or disabling illness

 

• The Alliance of Genetic Support Groups
  A non-profit organization dedicated to helping individuals and families who have genetic disorders with a toll-free helpline as a resource for consumers and professionals who are looking for genetic support groups and genetic services.

 

• Needy Meds
  A listing, by drug company or specific drugs, of patient assistance programs for those families needing help with costs

 

• The Celiac Support Pages

 

Asthma and Allergy

• Allergy and Asthma Foundation of America

• American Academy of Allergy, Asthma and Immunology patient information

• American Lung Association
   

Attention Deficit Disorder

• Children and Adults with Attention Deficit Disorders (CH.A.D.D.)

• National Attention Defecit Disorder Association

 

Autism

• Autism Society of America

• Autism links

​

Birth Defects

• March of Dimes Home Page

• Association of Birth Defect Children

 

Blind Children

• Blind Children's Center

• National Org of Parents of Blind Children

 

Cancer

• Children's Cancer Web

• Candlelighters Childhood Cancer Foundation

• Oncolink- cancer info from U Penn

• Childrens Brain Tumor Foundation
   

Cerebral Palsy

• United Cerebral Palsy

• Information from the University of Virginia

 

Cleft Lip and Palate

• Wide Smiles

• The American Cleft Palate-Craniofacial Association

​

Congenital Heart Disease and Arrhythmia

• Sudden Arrhythmia Death Syndromes Foundation, info on prolonged QT

 

Congenital Syndromes

• Williams Syndrome Association

• Prader-Willi Syndrome

• CriDuChat syndrome support

• Arthrogryposis Multiplex Congenital Support

• Angelman Syndrome

• CHARGE Syndrome

 

Cystic Fibrosis

• Cystic Fibrosis Foundation

 

Deafness/Hearing Loss

• Alport Syndrome Home Page

​

Death and the Terminally Ill Child

• Make-A-Wish Foundation

• Compassionate Friends

​

Dermatology (Skin) Conditions

• National Psoriasis Foundation

• National Center for Ectodermal Dysplasia

• National Organization for Albinism and Hypopigmentation

​

Diabetes

• American Diabetes Assoc.

• Juvenile Diabetes Foundation

• Children with Diabetes Online Community

• Online Resources for Diabetics

• Diabetes Monitor - links to many diabetes sites

• Managing Your Diabetes

​

Disabilities

​

Divorce

• New York State Parent Education and Awareness Program

​

Down's Syndrome

• Down Syndrome Education

• National Down Syndrome Society

• Down's Syndrome - Health Issues, by pediatrician and father of Downs syndrome child

• Growth Charts for Children with Down Syndrome

​

Ear, nose and throat problems

• Kids-ent.com - the ear, nose and throat page for parents

​

Epilepsy

• Epilepsy Foundation of America

• Epilepsy-International

• Washington Univ. Comprehensive Epilepsy Program

​

Food Allergy

• Food Allergy Network

• Info on food allergy from American Academy of Allergy, Asthma and Immunology

• International Food Information Council - Food Allergy/ Asthma

​

Fragile X Syndrome

• FRAXA Research Foundation

• The ARC, national site for people with intellectual and mental disabilities

​

Gastrointestinal Conditions

• Pediatric and Adolescent Gastroesophageal Reflux Association

• Children's Liver Alliance

​

Hemangioma and Vascular Birthmark

• Hemangioma and Vascular Birthmarks Foundation

​

Hydrocephalus

• Hydrocephalus Association

​

Kidney Disease

• National Kidney Foundation

• Information on kidney diseases from NIH

• Renal Net

• American Association of Kidney Patients

• Alport Syndrome Home Page.

• Klippel-Feil Syndrome

• KFS Circle of Friends

​

Lice

• Lice Clinics of America-Upstate NY by Naughty Nits

​​

Lead Poisoning Resource Centers
 

• WNY LPRC – Buffalo office

  • Allegany, Cattaraugus, Chautauqua, Erie, Genesee, Niagara, Orleans and Wyoming counties

 

• WNY LPRC – Rochester office

  • Central Region Office (Syracuse): covers Broome, Cayuga, Chenango, Cortland, Herkimer, Jefferson, Lewis, Madison, Onondaga, Oswego, Madison, St. Lawrence, Tioga and Tompkins counties

​

• CNY LPRC (for both Central and Eastern regions)

  • Eastern Region Office (Albany): covers Albany, Clinton, Columbia, Delaware, Essex, Franklin, Fulton, Greene, Hamilton, Montgomery, Otsego, Rensselaer, Saratoga, Schenectady, Schoharie, Warren and Washington counties

​

• Metropolitan/Hudson Valley LPRC

  • Eastern Region Office (Albany): covers Albany, Clinton, Columbia, Delaware, Essex, Franklin, Fulton, Greene, Hamilton, Montgomery, Otsego, Rensselaer, Saratoga, Schenectady, Schoharie, Warren and Washington counties

​

Learning Disability

• Learning Disabilities Online

• Learning Disabilities Association

• International Dyslexia Association

​

Mental Retardation

• The ARC, national site for people with intellectual and mental disabilities

• Mitochondrial Diseases

• The United Mitochondrial Disease Foundation

​

Multiple Births

• National Organization of Mothers of Twins Clubs

• Mothers of Super Twins (triplets +)

• TWINS Magazine (some sample articles)

​

Neurofibromatosis

• National Neurofibromatosis Foundation

• Neurofibromatosis Support

​

Obsessive-Compulsive Disorder

• OCD Resource Center
   

Organ Transplantation

• Children's Organ Transplantation Assoc.

​

Prematurity

• For Parents of Premies

​

Rare Diseases

• National Organization for Rare Disorders (NORD)

• Rare Genetic Diseases in Children

​

Sexuality

• Planned Parenthood

• Dr. Ruth On line

• Coalition for  Positive Sexuality

  

Substance Abuse

• The Web of Addiction

• D.A.R.E. Homepage

• Alcoholics Anonymous

• Al-anon and Alateen Page

 

Sickle Cell Anemia

• Sickle Cell Information Center

 

Spina Bifida

• Children with Spina Bifida

• Spina Bifida Assoc. of America

• Association for Awareness of Occult Spinal Dysraphism

​

Sudden Infant Death Syndrome

• SIDS Network

• American SIDS Institute

• Tay-Sachs and other degenerative diseases

• National Tay-Sachs and Allied Diseases

• Thalassemia (Cooley's Anemia)

• Cooley's Anemia Foundation

​

Seasonal Safety Resources

• Visit CPSC Kid's Page - handouts on various safety issues

Bicycling Safety

​

Rollerblading Safety

• International In-Line Skating Association - safety info

• Facts - Inline Skating
   

Sun Safety

• American Academy of Dermatology's Sun Safety Page

• Summer Sun Safety from kidshealth.org

Miscellaneous - other health related and some fun sites

• Teen  Advice Online

• HEARNet

• Frequently Asked Questions for Teenage Orthodontic Patients